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RHEUMATOID ARTHRITIS *RANT AHEAD*

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RHEUMATOID ARTHRITIS *RANT AHEAD*


[+] serious ballot by socal_sweetie
ACTIVE Tue Mar 20, 07 - Mon Jun 18, 07

Ok i've had Rheumatoid Arthritis since i was 18, so bad at times that i can't lift my arm or bend my knees or even make a fist, seriously. When i get flare up's i can't so much as lift a gallon of milk and my friends understand and my mom even knows because she was there when i had flare ups as a young girl working at sunglass Hut and Dennys, she knows when it's bad i can't so much as roll up a window! I had to quit jobs because it's so bad!

The problem? Now i have 3 kids and a husband and suddenly it's back again really bad. Anyone that knows Rheumatoid Arthritis (Not Osteoarthritis, it's way worse and usually only the elderly get that kind, BIG difference, mine is crippling as well) well now i can't do things i need to do, like even walk in the morning because in the morning it is worse, it's in my toe joints even so i limp, EVERY joint. My kids help me in the morning, they know, my kids KNOW and do anything they can to help me!

It's so bad in the morning and usually gets better as the day progresses. Well my husband makes me feel like total shit about it...he seems to not believe me and he was yelling at me trying to force me to read about "poor circulation" on the net last night and i was already upset because (even though he says he didn't mean to) he hurt my feelings by saying "sitting on that computer all day probably" and "i think i have it in my knee, it was hurting today" (come on now, it's a disease not a leg cramp!) so he makes me feel worthless when in all actuality i tried my hardest to put together a litterbox we got by UPS that i couldn't put it all together because of my finger joints and cleaned house and pottytrained the kid and walked all the way to the school to bring chapstick to my kid ETC.) Making me feel like a worthless fat ass, like all i do is sit on here! He's the "great man" that works and i stay home with our mildly autistic 5 year old! Fact is, when he makes me feel worthless i just feel like dying inside and he always says i'm getting too defensive when he says "poor circulation" and it's not poor circulation, it's arthritis! When he's mad at me he says "i don't do anything around here" and i do as much as i can with this pain, and i do stuff all the time, i have a 5 year old, i don't watch tv, the typing on here actually heats up my hands warming my fingers and soothing the joints, people say they can't believe how clean our house is having 3 boys (besides the video games laying around and skateboards and stuff!) omg his mom even understands and comes over to do the DEEP scrubbing on stuff, so basically i just feel like blah...so just shoot me please.

Can someone please tell him that Rheumatoid Arthritis isn't because of poor blood circulation? It's a freakin disease, yes excersize helps but come on now i'm healthy as a horse, i ride dirt bikes, we camp all weekend, i creak around in my joints forcing myself to be active, i deal with more pain than he could ever handle plus i have 3 boys!

By the way, on his behalf, he does make up with me after making me feel like killing myself! He does amazing things. He buys me stuff and i do feel that he loves me. He just doesn't understand my pain.

Does ANYONE else in the world have this bad of arthritis?

I guess he has to see it to believe it. I'm ready to cut open my hand and show him the deterioration.

???????
Comment
It's a joint disease, be more understanding?
medicinal marijuana?


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COMMENTS:
I suggest you guys go to one of those support groups, so that your husband can understand more about the disease.

056
by LCD on Tue Mar 20, 07 8:53am [+]

Never thought about that, if they have support groups for this, I AM SO THERE!

by socal_sweetie on Tue Mar 20, 07 8:54am [+]

and i'm taking fuckstain along with me!
by socal_sweetie on Tue Mar 20, 07 8:55am [+]

I'm so pissed dude, it feels like if your joints, mainly your hand joints are all crushed in a machine and you can soothe it by like a hot bath but you can't DO anything to heal it.

Thanks LCD :(
by socal_sweetie on Tue Mar 20, 07 8:57am [+]

I'm sorry about your illness, i really am. There are people in my family who've experienced episodes of rheumatism and it was aweful to see them suffer. Rheumatoid Arthritis is much worse though. I've got to say i'm surprised at the way your hubby behaved when you told them you're having an RA episode. He really has no idea what's it all about... Seems like you need to get him to read more about this illness and tell him even top level athlets can have RA. One of my fav footie players during adolescence had to give up on his career because of this. So the blood circulation has nothing to do with that even though exercise can remit the disease.
by seamus on Tue Mar 20, 07 9:22am [+]

I'm so sorry. I hope your flare up settles down soon. Your husband needs to get educated on this topic, and I hope he does. A support group sounds like a great idea.

Hang in there.
by cranky on Tue Mar 20, 07 9:51am [+]

Voted : It's a joint disease, be more understanding?

I agree with LCD. He needs to 'get' what you are going through.

If you don't have time to make a trip in the car, I'll bet there are support groups on the internet. Join one of those, and show him some entries from people who are in your situation.

Also, it might not hurt to kindly remind him of all the times HE was sick or in pain, when you were sympathetic and loving. Guys have a tendency to forget about that.

Meanwhile, be kind to yourself and don't let anyone make you feel worse about what is a legitimate disease without a known cure (as yet). I have confidence they will have a breakthrough in the next couple of years, since this is such a widespread problem.

x x x x x
by mojo on Tue Mar 20, 07 10:01am [+]

Poor circulation has absolutely nothing to do with your joints. Poor circulation causes cramped feelings, and NOT joint problems.
by nuckinfutz on Tue Mar 20, 07 10:16am [+]

smash his hand in a door and be like HA TWINS. and he'll go WTF WOMAN. and then tell him to scrub the floors.
by ThisIsNate on Tue Mar 20, 07 10:41am [+]

Thanks, i feel alot better. You guys are always here for me when i rant, sorry it's always so long :/

Seamus: Exactly my point, about athletes even have it.

There are no support groups up here in the desert, i checked but like mojo said i can find an online one and have him read that,

and Nate, you always make me laugh005054
by socal_sweetie on Tue Mar 20, 07 12:30pm [+]

Voted : medicinal marijuana?
I would look into it.

It is a disease and usually all docs give to you is steroids and anti-inflamatories.

I like Nates suggestion lmao
by ladyshanalyn on Tue Mar 20, 07 3:48pm [+]

Voted : medicinal marijuana?
^ Good one Nate!
by RunsWithScissors on Tue Mar 20, 07 5:48pm [+]

Voted : It's a joint disease, be more understanding?
It's always something. I know people with other illnesses, some worse than arthritis. It's a shame some people aren't more understanding.
by skylab on Tue Mar 20, 07 8:05pm [+]

Having this kind of misunderstanding with the person you're supposed to be closest to it is like mind-rottingly bad.
My hubband and I are like this, sometimes we see eye-to-eye totally and sometimes he just will not even try to understand something I'm dealing with, even kinda diminishing the things (psysical or emotional) that bother me.
It makes me feel more homicidal than suicidal though.
I guess you just have to be patient with him, assume he cannot understand you, smile and turn away and wait until his mood changes. (or is that too passive/aggressive? I don't know but it works for me anyway.)
by Jyl on Wed Mar 21, 07 6:15am [+]

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